Dr Charles Lapp on our radiowaves following warm reception in Wellington

Dr Lapp and WellMe
Sandra Forsyth, Vice Chair, Annie Judkins from Continuing Medical Education, Dr Charles Lapp, Catherine Kunz-Entwistle, Chair of WellMe after Dr Lapp’s lecture to first year registrars

Dr Lapp’s comprehensive lecture was very well received and WellMe is pleased it has been instrumental in educating the doctors who will provide the future care of its members.

To fully optimise the short time Dr Lapp would be in Wellington, WellMe worked tirelessly to arrange a lecture on ME/CFs/Fibromyalgia to first year Registrars.

Further to his tour, Sandra Forsyth, Vice Chair of WellMe has arranged for Dr Charles Lapp to be interviewed on Radio NZ’s Nine to Noon program on Tuesday 4th April.

Dr Lapp is a world renown ME/CFS/Fibromyalgia expert and a Director of the prestigious Hunter-Hopkins Centre a US clinic specialising in the diagnosis and treatment of ME/CFS and Fibromyalgia.

Dr Charles Lapp, Physician and Medical Director of Hunter Hopkins Centre in North Carolina, to visit Wellington as part of his Lecture Tour of New Zealand

Dr Charles Lapp, Physician and Medical Director of Hunter Hopkins Centre in North Carolina, USA will be undertaking a brief lecture tour of New Zealand between 26 March and 6 April.

Dr Charles Lapp
Dr Charles Lapp, Physician and Medical Director of Hunter  Hopkins Centre, Noth Carolina USA

Dr Lapp is recognised both nationally and internationally for his expertise in Myalgic Encephalopathy Society/Chronic Fatigue Syndrome, Fibromyalgia and related conditions.

Dr Lapp will be speaking in Dunedin, Wellington, Hamilton, Napier and Nelson with a final lecture in Auckland on 6 April.

In an order to maximise Dr Lapp’s time and expertise, WellMe, after much negotiation, has been able to arrange for a lecture to first year Registrars which will form part of their Continuing Medical Education programme.

WellMe is very pleased with this outcome, believing it vital that doctors who will be treating our members in the future have a better understanding of ME/CFS and Fibromyalgia.

The lecture will take place on Thursday, 30 March. Although this is a closed meeting, WellMe has been able to invite selected medical professionals and researchers with expertise in ME/CFS and Fibromyalgia.

A recording of a Dr Lapp lecture will be made available to our members in due course.

WellMe raising awareness of MECFS with the Hon Anette King

Sandra Forsyth and Annette King Waikanae 2 March

WellMe has a long term strategy for the raising of public awareness around ME/CFS and the advancement of better outcomes for our members.

As part of that strategy, and WellMe’s ongoing lobbying and active relationship building, Sandra Forsyth, Vice Chair and Eileen Brodigan, Special Projects Manager, attended a recent Labour Party meeting on health.

While there Sandra and Eileen discussed with Annette King our members inability to access the public health system and the financial devastation caused by chronic illness with further discussions to take place. 

Photo: Sandra Forsyth, Vice Chair of WellMe with Hon Annette King former Minister of Health, current opposition spokesperson for Health, member of the Select Committee on Health and MP for Rongotai 

Administrative Coordinator Hours

Hello Lovely Friends,

The Administrative Coordinator telephone office hours have been set as Monday, Tuesday, Thursday &  Friday from 10:30am to 2:00pm. You can contact me by phone on 0800 632 847. Any urgent requests are free to come outside of office hours.

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As always, for questions and information you can get in touch with me via email, or if you are looking to book a time with Claire, you can contact her directly through her WellMe email address.

I look forward to seeing at you our 3 March Support Group meeting with Dr. Rosamund Vallings.

Jen Purvis
Administrative Coordinator

Study suggests some chronic fatigue syndrome patients may benefit from anti-herpesvirus drug treatment

Many experts believe that chronic fatigue syndrome (CFS) has several root causes including some viruses. Now, lead scientists Shara Pantry, Maria Medveczky and Peter Medveczky of the University of South Florida’s Morsani College of Medicine, along with the help of several collaborating scientists and clinicians, have published an article  in the Journal of Medical Virology suggesting that a common virus, Human Herpesvirus 6 (HHV-6), is the possible cause of some CFS cases.

More @ ProHealth

 

An Interview With Julia Newton, Founding Member of Newly Launched CFS/ME Research Collaborative

Dr. Julia Newton is one of the founding members of the recently launched UK CFS/ME Research Collaborative (UK CMRC), a new initiative aimed at expanding medical studies into ME/CFS, by bringing together experts in the field and several of the ME/CFS charities in the UK.

Dr. Newton is Dean for Clinical Medicine at Newcastle University in the United Kingdom. She is also Clinical Professor of Ageing and Medicine at Newcastle University and a Consultant at the Royal Victoria Infirmary within the Newcastle Hospitals NHS Foundation Trust. She is highly respected in her field, possesses a wide range of skills and has won awards for her communication skills, scientific presenting, teaching and innovation.

Dr. Newton kindly took the time to answer some questions about the new collaborative and her research activities.

More @ ProHealth