Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) is an Inflammatory Disorder

http://simmaronresearch.com/2017/08/major-stanford-study-indicates-chronic-fatigue-syndrome-mecfs-is-inflammatory-disorder/

Conclusion (copied from the link above)

lighthouse

This study, as did the Lipkin/Hornig study, suggested you have to approach ME/CFS differently than other diseases to be successful.

One of the things that emerged from this study is that ME/CFS really, really is different and woe to any researcher who assumes that it’s not. The regular rules of the road do not apply – you can’t just measure cytokine levels and expect to get anything. You have to dig deeper, and what this study and the large Lipkin/Hornig study before it demonstrated was that if you do dig deeper, you might stumble on something extraordinary.

The study’s excellent pedigree – it’s size, the lab it took place in and the journal it was published in – guarantees it will get noticed and that’s a good thing. The most important aspect of the study may be the legitimization it confers on the illness. Hopefully the study will introduce new researchers intrigued by what could be a new type of inflammatory disorder to the field.  While more work is needed, the study also points to possible future effective treatment options. Lastly, the study indicates, as did the Lipkin/Hornig study, that bigger really is much, much better in ME/CFS research. Hopefully funders will take a cue from these large studies, and support the bigger and more definitive studies this disease needs to move forward

Street Appeal Collection Thursday 15 June 2017 Wellington CBD

 

Empowering People with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, Fibromyalgia & Related Conditions

 

We are having an Street Appeal on

Thursday 15 June 2017

10am – 2pm

We need your help

Can you hold a collection bucket for an hour or more? 

Can you ask a family member or friend to hold a bucket on the way to work or during their lunch hour?

Four locations in Wellington CBD

To assist please email

information@wellme.org.nz

Professor Anne La Flamme to speak on ‘When the Body’s Immune system changes from Friend to Foe’ at St Johns in the City Tuesday 9 May: 6:00pm

WellMe is pleased to announce Professor Anne La Flamme as our keynote speaker at its Keynote Speaker Wellington meeting to be held at 6 pm, Tuesday, 9 May at St Johns in the City conference room, Ground Floor, corner of Willis Street, Dixon Street, Te Aro, Wellington 6011.

Professor La Flamme has been in New Zealand for eleven years, and is a Professor in Cell and Immunobiology at the School of Biological Sciences, Victoria University of Wellington. She is also Head of the MS Research Programme at the Malaghan Institute of Medical Research. Professor La Flamme is one of New Zealand’s leading Multiple Sclerosis (MS) researchers and is focused on finding a cure for this immune mediated disease, and in particular aims to find a treatment that will benefit the sub-set of MS patients that do not respond to any existing treatment.

Professor La Flamme received her BSc in Life Sciences from the Massachusetts Institute of Technology and her Masters in Molecular Parasitology and PhD in Immunoparasitology from the University of Washington, Seattle. After receiving her doctorate, Professor La Flamme spent several years at Cornell University studying how parasites alter the host’s immune response and cause immune-mediated pathology.

Recently, Professor La Flamme’s laboratory found that a commonly used anti-psychotic drug is effective at modifying MS in an experimental model of the disease. Through a Neurological Foundation-funded project, she is investigating the potential of this drug to treat MS and the findings will guide future trials of the drug in MS patients. If this drug is effective for the treatment of MS, new insights into immune dysfunction and its contribution to disease pathogenesis will emerge.

Professor La Flamme will talk on ‘When the Body’s Immune System Changes from Friend to Foe and its impact on our health’.

Dr Charles Lapp on our radiowaves following warm reception in Wellington

Dr Lapp and WellMe
Sandra Forsyth, Vice Chair, Annie Judkins from Continuing Medical Education, Dr Charles Lapp, Catherine Kunz-Entwistle, Chair of WellMe after Dr Lapp’s lecture to first year registrars

Dr Lapp’s comprehensive lecture was very well received and WellMe is pleased it has been instrumental in educating the doctors who will provide the future care of its members.

To fully optimise the short time Dr Lapp would be in Wellington, WellMe worked tirelessly to arrange a lecture on ME/CFs/Fibromyalgia to first year Registrars.

Further to his tour, Sandra Forsyth, Vice Chair of WellMe has arranged for Dr Charles Lapp to be interviewed on Radio NZ’s Nine to Noon program on Tuesday 4th April.

Dr Lapp is a world renown ME/CFS/Fibromyalgia expert and a Director of the prestigious Hunter-Hopkins Centre a US clinic specialising in the diagnosis and treatment of ME/CFS and Fibromyalgia.

Dr Charles Lapp, Physician and Medical Director of Hunter Hopkins Centre in North Carolina, to visit Wellington as part of his Lecture Tour of New Zealand

Dr Charles Lapp, Physician and Medical Director of Hunter Hopkins Centre in North Carolina, USA will be undertaking a brief lecture tour of New Zealand between 26 March and 6 April.

Dr Charles Lapp
Dr Charles Lapp, Physician and Medical Director of Hunter  Hopkins Centre, Noth Carolina USA

Dr Lapp is recognised both nationally and internationally for his expertise in Myalgic Encephalopathy Society/Chronic Fatigue Syndrome, Fibromyalgia and related conditions.

Dr Lapp will be speaking in Dunedin, Wellington, Hamilton, Napier and Nelson with a final lecture in Auckland on 6 April.

In an order to maximise Dr Lapp’s time and expertise, WellMe, after much negotiation, has been able to arrange for a lecture to first year Registrars which will form part of their Continuing Medical Education programme.

WellMe is very pleased with this outcome, believing it vital that doctors who will be treating our members in the future have a better understanding of ME/CFS and Fibromyalgia.

The lecture will take place on Thursday, 30 March. Although this is a closed meeting, WellMe has been able to invite selected medical professionals and researchers with expertise in ME/CFS and Fibromyalgia.

A recording of a Dr Lapp lecture will be made available to our members in due course.

WellMe raising awareness of MECFS with the Hon Anette King

Sandra Forsyth and Annette King Waikanae 2 March

WellMe has a long term strategy for the raising of public awareness around ME/CFS and the advancement of better outcomes for our members.

As part of that strategy, and WellMe’s ongoing lobbying and active relationship building, Sandra Forsyth, Vice Chair and Eileen Brodigan, Special Projects Manager, attended a recent Labour Party meeting on health.

While there Sandra and Eileen discussed with Annette King our members inability to access the public health system and the financial devastation caused by chronic illness with further discussions to take place. 

Photo: Sandra Forsyth, Vice Chair of WellMe with Hon Annette King former Minister of Health, current opposition spokesperson for Health, member of the Select Committee on Health and MP for Rongotai