The HFME 3 Part M.E. ability and severity scale PART 2 – COGNITIVE ABILITY SCALE

How can the ability scale help me?

Often when we’re at the doctor’s office or other important (like really important!) medical appointments, the overwhelming feelings of travelling, noise, lights, the exhaustion, the anxiety can all become too much, and if you’re like me, then your brain might just completely implode at that moment and you’re completely unable to express how your illness is affecting YOU.

This is part 2 in a series of 3 in how you can explain your illness to your doctor by using an ability scale.

Part 2. Cognitive ability scale

 

The HFME 3 Part M.E. ability & severity scale

PART 2 – COGNITIVE ABILITY SCALE

Copyright Jodi Bassett 2005 to 2010. Taken from www.hfme.org

FULLY RECOVERED
100% An unrestricted level of cognitive functioning is possible.
VIRTUALLY RECOVERED
90% A high level of cognitive functioning is possible; around 90% of pre-illness level. Able to cope on a cognitive level with full-time study or work without difficulty and enjoy a full social life.
MILDLY AFFECTED
80%

A high level of cognitive functioning is possible, around 80 – 90%. Minimal restrictions apply for activities that demand a high standard of cognitive functioning. Unable to manage full-time study or work without difficulty in areas that place an excessive demand on a cognitive level.

 
70% Cognitive functioning is at/or around 70 – 80%; a daily cognitive activity limit is clearly noted. Unable to work fulltime where high demands are made on a cognitive level, but can work fulltime in less demanding jobs if hours are flexible. Some restrictions on social life.
MODERATELY AFFECTED
60% Cognitive functioning is at/or around 60% ; unable to perform tasks which are excessively demanding on a cognitive level, but can complete lighter activities for 5 – 7 hours a day although rest periods are required. Cognitive functioning degenerates significantly in a crowded, noisy or busy environment or with sustained and/or high level use. Social life may be moderately affected.
 
50% Cognitive functioning is at/or around 40 -50%; unable to perform tasks which are excessively demanding on a cognitive level, but able to work part-time in lighter activities for 4 – 5 hours a day (or perhaps longer at a reduced quality level) if requirements for quiet and resting are met. Cognitive functioning degenerates significantly in a crowded, noisy or busy environment or with sustained and/or high level use. Social activities with environments that are quiet and not mentally challenging are possible.
MODERATELY TO SEVERELY AFFECTED
30% Cognitive functioning is reduced to around 30 – 40%; unable to perform mentally challenging tasks, but able to complete simpler cognitive tasks (study or work) for 3 – 4 hours a day (or perhaps longer at a lower quality level) if requirements for quiet and resting are met. Concentration and cognitive ability are significantly affected. Following the plots of some TV shows or books may be difficult. Non-mentally challenging social activities possible on a limited basis.
 
20% Cognitive functioning is reduced to around 20%; unable to perform mentally challenging tasks easily or often, but able to complete less complex cognitive tasks for 2 – 3 hours a day (or perhaps longer at a lower quality level) if requirements for quiet and resting are met. Concentration, memory and other cognitive abilities are significantly affected. Following the plots of TV shows or books may be difficult. Non-mentally challenging social activities possible on a limited basis.
SEVERELY AFFECTED
10% Cognitive functioning is reduced to around 10%; unable to perform mentally challenging tasks easily or often, but able to complete less complex cognitive tasks for 1 – 2 hours a day (or perhaps longer at a lower quality level) if requirements for quiet and resting are met. Concentration, memory and other cognitive abilities are significantly affected at all times and may be severely affected during relapses. Concentration for more than half an hour at a time may be extremely difficult. Following the plots of some TV shows or books may be difficult or impossible. Non-mentally challenging social activities possible on a very restricted basis.
 
5% Cognitive functioning is reduced to around 5%; unable to perform even moderately mentally challenging tasks easily or often, but able to complete less complex cognitive tasks for about an hour or so each day (or perhaps longer at a lower quality level) if requirements for quiet and resting are met. Concentration, memory and other cognitive abilities are significantly affected at all times and may be severely affected during relapses. Concentration for more than 10 to 15 minutes at a time may be extremely difficult. Following the plots of TV shows or books may be difficult or impossible. Non-mentally challenging social activities possible occasionally for short periods.
VERY SEVERELY AFFECTED
3% Cognitive functioning is reduced to less than 5%; able to complete simple cognitive tasks for about 10-30 minutes each day (or perhaps longer at a lower quality level) if requirements for quiet and resting are met. Concentration, memory and other cognitive abilities are severely affected. Concentration may be extremely difficult. Only short periods of TV, radio or reading are possible. A friend can be seen for approximately 10 – 30 minutes a week.
 
1% May be able to complete simple cognitive tasks such as talking, listening to speech or reading (with difficulty) for several 2–10 minute periods throughout the day if requirements for quiet and resting are met. Concentration, memory and other cognitive abilities are very severely affected. Concentration may be extremely difficult. There may be an inability to maintain full consciousness throughout the day. No TV is possible but quiet music or an audio book may be listened to for short periods. A close friend or family member can be seen for a few minutes, occasionally.
PROFOUNDLY SEVERELY AFFECTED
0.5% Concentration, memory and other cognitive abilities are extremely and severely affected. Achieving even a low level of concentration may be extremely difficult or impossible, and there may be a high degree of cognitive confusion as a result. No TV or radio is possible. There may also be a difficulty maintaining consciousness for more than a few minutes at a time. Receiving visitors (even close family members) is almost impossible or impossible. Talking, reading or writing more than the occasional few words is often impossible.

SOURCE (http://www.hfme.org/themeabilityscale.htm)

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