Baffling Chronic Fatigue Syndrome Set for Diagnostic Overhaul

Researchers might soon redefine the mysterious condition, while the latest findings point to the role of brain inflammation.

May 16, 2014 |By Katherine Harmon Courage

More than one million people in the U.S. suffer from a poorly understood, difficult-to-diagnose condition that can leave them debilitated by unshakable exhaustion, pain, depression and cognitive trouble. Researchers, however, are still unsure what causes chronic fatigue syndrome (CFS), how to treat it, how best to diagnose it and even what to call it.

A new study is now providing hope for better understanding—and potentially better diagnosing—the disease. It has revealed a striking pattern of brain inflammation in CFS patients. Meanwhile, diagnosis and definition of the disease could soon be getting a major overhaul as a new $1-million Institute of Medicine (IOM) study gets underway at the request of theU.S. Department of Health and Human Services (HHS). Is the exhausting search for answers about CFS finally coming to an end?

Read More Here.


One thought on “Baffling Chronic Fatigue Syndrome Set for Diagnostic Overhaul

  1. We advocates, and the ME patients, in the US are not very happy with the IOM. First of all, the Dept of Health and Human Services, illegally, secretly and underhandedly, contracted with the IOM without any bidding from other organizations. Then, when they formed the panel, the majority of members were not ME/CFS experts or researchers familiar with the chronic illness. There was a letter, written in the Fall of 2013, signed by 50 global experts, requesting that the DHHS accept the CCC (Canadian Consensus Criteria) as the official diagnostic criteria. That letter was ignored, and the signing experts were summarily dismissed as non-existent. We taxpayers believe the $1 million, granted to the IOM, is a waste of our money. The majority of patients and advocates, from what I have read (and I’ve read a great deal about the situation), believe no good will come out of this; in fact, it might put us back from whatever progress has been made so far. So, you see, the matter is more than what you have summarized.

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