May 24, 2012 • 9:35 am 0
Zona Taylor (FibromyalgiaNervePain.com) decided to share her rules for living with fibromyalgia after reading “Uncertainty About Recovery from ME/CFS & Fibromyalgia – a Patient’s Point of View.” Thank you very much, Zona!
Filed under: Notice Board, Fibromyalgia
May 21, 2012 • 6:12 pm 0
The retrovirus XMRV does not cause prostate cancer or chronic fatigue syndrome — that hypothesis was disproved by the finding that the virus was produced in the laboratory in the 1990s by passage of a prostate tumor in nude mice. A trio of new papers on the virus attempt to address questions about the serological detection of XMRV in prostate cancer, and further emphasize that XMRV is not a human pathogen.
Filed under: Notice Board, xmrv
May 9, 2012 • 3:53 pm 0
To help publicize International ME/CFS & FM Awareness Day this May 12 members of our group and other volunteers will be on the streets of Wellington, Lower Hutt, Porirua and Whitby seeking donations.
So if you see anyone please smile, and give generously.
This year, 2012, marks the 20th year for an International May 12th Awareness Day.
The idea originated with Tom Hennessy, the founder of RESCIND, Inc. (Repeal Existing Stereotypes about Chronic Immunological and Neurological Diseases). Mr. Hennessy was based in the US but understood that it needed to be an International event.
He designated May 12 as the International Awareness Day for the spectrum of illnesses he called Chronic Immunological and Neurological Diseases (CIND).
May 12 was chosen as it coincided with the birth date of Florence Nightingale, the English army nurse who inspired the founding of the International Red Cross. Nightingale became chronically ill in her mid-thirties with a Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)-like illness. She was often bedridden for the last 50 years of her life. Despite suffering from a debilitating illness, she managed to found the world’s first School of Nursing.
Filed under: Notice Board
May 8, 2012 • 9:21 am 1
Fibromyalgia and Chronic Fatigue Syndrome sufferers around the world are looking forward to May 12th 2012 for their international awareness day. The exciting news is that a new charitable trust is launching here in New Zealand on May 10th to provide services for 120,000 – 220,000 people who suffer in this country.
Fibromyalgia (Fibro) and Chronic Fatigue Syndrome (CFS) are extremely debilitating disorders with symptoms such as extreme fatigue (unrelieved by rest), severe headaches, chronic sore throats, body wide muscle pains and spasms, insomnia, severe abdominal pain and nausea.
After 2 years of preparation and building relationships within the health sector, both medical and not for profits, the Chronic Pain and Fatigue Trust is now ready to start providing no cost services to sufferers throughout the country. Services are aimed at achieving four main priorities;
Raising awareness and understanding in the community
Education of medical communities
Education, self-management and treatment advice and support for those that suffer
Fieldworkers to provide practical assistance for the severely unwell
The official launch is being held at Rannoch House in Epsom (Thursday 10th May) and is being celebrated by medical professionals, volunteers, other not for profit representatives and local sufferers.
All press are welcome to attend. Canapés and drinks from 6.30 onwards.
Contact Details:
Emma Nielsen
Founder & Chair
Ph: 09 282 3865
Cell: 021 607 661
Filed under: Notice Board, Fibromyalgia, Pain
May 7, 2012 • 1:04 pm 0
A commercial website for people suffering from symptoms of chronic fatigue syndrome and fibromyalgia is rife with numerous illegal and misleading treatment claims, according to a recent warning letter sent to Dr. Jacob Teitelbaum by the U.S. Food and Drug Administration.
Filed under: Notice Board
May 2, 2012 • 12:28 pm 0
We have published the Spoon Theory by Christine Miserandino here before. But now we are able to provide a video of The Spoon Theory presented by the writer, Christine Miserandino.
Filed under: Notice Board
May 1, 2012 • 12:27 pm 1
Findings show that patients with chronic fatigue syndrome have decreased activation of an area of the brain known as the basal ganglia in response to reward.
Filed under: Notice Board, basal ganglia, research
May 1, 2012 • 12:26 pm 0
Normally, pain is accompanied by healing and repair, and this involves inflammation. But when things get complicated, as with autoimmune activity, fibromyalgia and ME/CFS, it is almost impossible to tease apart the threads of chronic pain, chronic fatigue and inflammation. And it is a combined approach that gets results.
Filed under: Notice Board, Fibromyalgia
April 26, 2012 • 12:48 pm 0
A new study led by CDC investigator Elizabeth Unger, MD, PhD, with collaborators at Emory University, Atlanta, and the University of Modena and Reggio Emilia, Italy, has identified unique responses in the brain’s basal ganglia that suggest an association between a biologic functional response and chronic fatigue syndrome (ME/CFS).
Filed under: Notice Board, research
April 5, 2012 • 9:56 am 0
Dr. Bruce Campbell directs the educational CFIDS and Fibromyalgia Self-Help website (www.cfidsselfhelp.com), and online self-help group discussion courses. These focus on sharing practical ways to cope with the daily challenges of life with ME/CFS/FM.
This article is part of a series on coping with the four major symptoms of CFS and fibromyalgia. Two cardinal rules are to use multiple strategies and experiment. As patients continue to find, the coping bonus is that pain, poor sleep, fatigue, and cognitive problems share so many causes that finding relief for one can have a multiplied effect.
Filed under: Notice Board
