Upcoming Meetings

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Upcoming Meetings

Kapiti Meetings

Wellington Meetings

Lower Hutt Meetings

August 2014
Wednesday 20 August Waimea Cafe, Waikanae 11am to 1pm
September 2014
Wednesday 17 September Waimea Cafe, Waikanae11am to 1pm
October 2014
Wednesday 15 October Waimea Cafe, Waikanae 11am to 1pm
November 2014
Wednesday 19 November Waimea Cafe, Waikanae 11am to 1pm
December 2014
No meeting planned at this stage.
January 2015
More information to come.
Our Meetings stay at the same venue on the third Wednesday of the month at the Waimea Cafe in Waikanae. We meet from 11am to 1pm.

 

August 2014
Monday 4 August, Johnsonville Community Centre, 12:30 to 2:30pm
September 2014
Monday 1 September,Anvil House, Wellington 12:30 to 2:30pm
October 2014
Monday 6 October, Johnsonville Community Centre12:30 to 2:30pm
November 2014
Monday 3 November, Anvil House, Wellington 12:30 to 2:30pm
December 2014
Monday 1 December, Johnsonville Community Centre 12:30 to 2:30pm
January 2015
No meetings held in January.
Our Meetings alternate venues between Anvil House in central Wellington and the Johnsonville Community Centre. We meet on the first Monday of the month (except in June because of Queen’s Birthday so choose to meet on the first Tuesday) and do not have meetings in January. We meet from 12:30 to 2:30pm.

 

August 2014
Tuesday 12 August, Room 1 Apex House, 1pm to 3pm
September 2014
Tuesday 9 September, Room 1 Apex House, 1pm to 3pm
October 2014
Tuesday 14 October, Room 1 Apex House, 1pm to 3pm
November 2014
Tuesday 11 November, Room 1 Apex House, 1pm to 3pm
December 2014
Tuesday 9 December, Room 1 Apex House, 1pm to 3pm
January 2015
More information to come.
Our Meetings stay at the same venue on the second Tuesday of the month in Room 1, Apex House (corner Laings Rd & Queens Drive) in Lower Hutt. We meet from 1pm to 3pm.

 

We welcome new members at any time but would love you to get into contact with our Community Support Worker Claire for more details before attending your first meeting.

 

If you’d like to get into contact with the group you can ring us (0800 632 847), email us information@wellme.org.nz or if you’re looking for immediate support, please click here.

Alternatively, you can find us on Facebook here and on twitter here.

If you find any errors on this website, or missing pages (404), please email us and let us know.

5 Ways to Help someone who is Chronically Ill by lisah

5 Ways to Help someone who is Chronically Ill by lisah

1. Just Listen~  Don’t try to find a solution. Most likely someone who is ill has researched and already found the obvious treatments. They just need to be able to open up about their feelings without feeling like someone is judging them for feeling sad, angry or scared.

2. Just do it, don’t ask~  If you stop by and see there are dishes in the sink, of course it will help if you do them. Someone who is ill will appreciate that so much. It is little things like that, that are huge to a person that is sick. Stop by with an already made dinner, or offer to give their kids rides to school. Things like this help tremendously. Just don’t ask. People don’t want to feel like a burden and it is hard to swallow your pride and admit you need help.

 

3. Support their diet~ Sometimes to someone who isn’t sick, diets of those who are might seem extreme. Trust them that there are reasons for them to eat how they do. Remember it is hard for them too. I’m sure they would rather be eating a chocolate chip cookie then a salad with gluten free dressing, but certain foods triggers inflammatory  responses or allergic reactions. So understand that they have certain dietary needs and support them.

4. Support their treatment~ This is another time when you just need to support, and not judge or try to give advice. When a person becomes chronically ill, they have ample time to research and learn about their disease. They will know all the treatments, join all the support groups and hear all the advice out there being given on there specific disease. When you see an ad in the back of some magazine that says, “(blah blah blah) cures this disease in six weeks, dont’ clip it out and give it to them. If it sounds to good to be true, it is. When you are chronically ill, it is because there is no cure. So all a person can do is try different treatments to find what works for them. There will be no easy answer and each person will respond differently to each treatment. Just because your cousin Jack got cured in five weeks from something doesn’t mean the next person will.

5. Don’t Invalidate~ When someone says they are in pain, they are in pain. It doesn’t matter that they “look” fine. There is no official face for pain. If they are moving slow, then let them take their time. Just because one day they had a “good” moment, doesn’t mean they are fine now. With chronic illness symptoms wax and wain. One day might not be as bad, or above baseline, and they might be able to work out in the garden for an hour. This does not mean that at the drop of a hat they can go out to eat or do the dishes. When you are ill you learn to take the moment at is comes or to live “five minutes at a time.” So try not to compare days or activites. The person is not faking. It is normal for a chronically ill person to have good times and bad times. Most likely their “good” times might land a normal person in the hospital, but they have learned to live around their symptoms and not panic anymore at certain aches and pain or strange neurological symptoms.

Source

Symptoms endured with grace by Clarissa Shepherd

Symptoms endured with grace

It seems that whether you have ME/CFS or Fibromyalgia that the symptoms are numerous. So numerous, in fact, that when we are asked to name them, we can’t remember them all. We , of course , have lots of pain, muscle weakness , muscle spasms, etc.

Many people think that this is all . Wow, if it were all, we would have it made. We then add in the memory loss, speech problems, acid reflux, IBS and the many other stomach issues. Then there’s, vertigo, off balance, dizziness, vision problems, itching and burning skin, yeast in various places, sleep disturbances of various kinds, night sweats, swollen lymph nodes, heart palpitations, brain fog, sensitivity to smells, chemicals, medications, noise, light, extreme heat and cold and sheer exhaustion beyond words. Oh and lets not forget, anxiety , depression, fearfulness and panic.

My point is that of all the illnesses that exist, we have some of the most complex symptoms of any. Yet, with all of our many symptoms , are not taken seriously. Who would have all of these things wrong and not be very sick ? No one ! I’m sure there are many that I’ve forgotten because I have memory loss. lol !! No wonder when we go to the doctor we can’t remember what all to discuss. I will make a list and still manage to forget something on my list.

Let’s face it. There is no way than anyone, other than another person who is surviving these monsters inside, can understand. We could tell them over and over and the explanation does not do justice to all that we endure. I am in awe of each of you . You suffer , yet you and reach out to others with compassion. Such bravery , I’ve never seen before.

So , we move ever forward, using every tool we can to help us in whatever way it can. Take these words and carry them with you . Say them over and over. ” I am enduring a nightmare and I am surviving it with grace. I must be kind to myself and love who I am”.

Clarissa Shepherd - Author, Find Your Way- Amazon

This is the reality for Chronic Fatigue sufferers

“Imagine this: waking up everyday feeling achy and exhausted, like you haven’t slept at all.

Imagine everyday tasks making you feel like you’ve just run a marathon, not being able to wash your hair without feeling like you’ve just bench pressed 40kgs, making lunch and having to rest afterwards because of the effort.

Imagine your brain getting foggy when trying to have normal conversations with friends, getting words muddled and confused, even though you’ve used them a million times before.

Imagine not being able to send texts, emails, or even read because it all feels like it zaps any energy that you do have right out of you.

This is the reality for chronic fatigue sufferers, and this became my reality.”

 

 

Read more here.

Feeling Brrrr? Embracing winter tips from Lifeline

 Here are some top tips from Lifeline Aotearoa to help get you through the winter.

  • Take up an outdoor activity – fresh air is a mood booster.
  • Exercise – 30 mins 3 times a week
  • Eat Good quality chocolate – look for high coca bean content to boost serotonin
  • Catch some Zzz’s – 7 to 8 hours is about right.
  • Install a light box at your desk – boost the amount of light at your desk
  • Embrace winter – look at the positives winter brings.
  • Change your scents – try spicy aromas like ginger or cardamom

http://www.lifeline.org.nz

Phillida Bunkle mentions the Wellington Region ME CFS Support Group in piece for Health Rising by Cort Johnson

Phillida Bunkle mentions the Wellington Region ME CFS Support Group in this piece for Health Rising by Cort Johnson.

Fighting Pain in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis with Trigger Point and Myofascial Therapy

Lots of great info on Trigger Points and Myofascial Pain, release, treatment, massage, etc.

Read more here.

 

ME: one third of patients ‘wrongly diagnosed’

ME: one third of patients ‘wrongly diagnosed’

A third of patients with Chronic Fatigue Syndrome, or ME, may be suffering from a treatable illness known as PoTS, a professor claims  By , 6:00AM BST 17 Jun 2014

A third of the people who believe they have Chronic Fatigue Syndrome, or ME, may be suffering from a treatable illness, a professor claims.

There is currently no medication for ME, which is characterised by fatigue, muscle aches and memory loss.

However, Prof Julia Newton, of the Institute for Ageing and Health at Newcastle University, believes that doctors often wrongly diagnose ME when people are suffering from Postural tachycardia syndrome (PoTS).

PoTS is a disorder of the nervous system that disrupts the body’s automatic functions, such as breathing.

Symptoms include dizziness, rapid heartbeat, fainting, nausea, excessive tiredness and trembling. Young women are most likely to be affected by the ailment, which afflicts about 110,000 people in Britain.

Read more here.